Celiac Disease in Children: Signs, Who Should Be Tested and Why Not to Go Gluten-Free First

In children, celiac disease can cause bloating, diarrhea or constipation, nausea, poor weight gain, delayed puberty and irritability, and some children have no symptoms. Children with symptoms, type 1 diabetes or a close relative with celiac disease should ask about testing, usually starting with a tTG-IgA blood test. Keep eating gluten until testing is done.

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By SmashMeals Editorial · Published · Updated

Celiac disease often looks different in children than in adults, and it is easy to miss. A stomachache that keeps coming back, slow growth or a child who seems irritable for no reason can all be signs. An October 2026 nationwide study from France adds new data on how often children are diagnosed. Here is what parents should know about symptoms, who should be tested and why going gluten-free too early can backfire.

This guide is general information, not medical advice. Talk with your child's pediatrician before changing their diet.

How common is celiac disease in children?

A study published in Pediatric Research on October 22, 2026 identified 41,690 children with celiac disease in France from 2011 to 2022. Diagnosed prevalence was 0.15% in 2022, ranging from 0.08% to 0.25% by region. Median age at diagnosis rose from 6 to 7, and girls were diagnosed more often than boys. Read our news coverage.

That study counted diagnosed cases. Many people with celiac disease are never tested. In the United States, Beyond Celiac estimates about 1 in 133 people has celiac disease, up to 83% are undiagnosed or misdiagnosed, and the average wait for a diagnosis is 6 to 10 years.

Signs in children

MedlinePlus notes that "Symptoms are different for children and adults." In children, MedlinePlus lists the signs below:

Digestive signsOther signs
Belly bloating or painPoor weight gain or weight loss
Chronic diarrhea with foul-smelling stoolDelayed puberty
ConstipationIrritability
Nausea and vomitingMention any other changes to your pediatrician

Some children have few or no symptoms at all.

Who should be tested

MedlinePlus says testing may be needed for people with symptoms and for people at higher risk even without symptoms, including those with:

In the French study, 9.7% of children with celiac disease also had type 1 diabetes. Beyond Celiac notes estimates that 5% to 22% of people with celiac disease have a first-degree relative who also has it.

How testing works

The most common first step is a blood test:

TestWhat it does
tTG-IgAThe most commonly used celiac antibody test
Total IgAChecks for IgA deficiency, which can make tTG-IgA falsely low
DGP antibodiesOften used when IgA is low and for children under 2

A positive blood test is usually followed by a specialist visit, and often an intestinal biopsy, to confirm the diagnosis.

Do not go gluten-free before testing

This is the most important practical point. MedlinePlus says "you'll need to continue to eat foods with gluten for a few weeks before testing." If your child stops eating gluten first, the test can come back falsely normal, and getting a clear answer later may require reintroducing gluten. Talk to your pediatrician before making any change.

After a diagnosis

A strict gluten-free diet is currently the only treatment. That means learning labels, guarding against cross-contact at home and school, and planning for parties and holidays. Helpful starting points:

Research on medicines is moving. Two drugs targeting the same immune pathway reported positive results in October 2026; our celiac treatment pipeline guide explains where they stand.

Dinners the whole family can share

When one child has celiac disease, many families find it easier to make the whole dinner gluten-free. SmashMeals cooks in a dedicated gluten-free kitchen in Kingsport, Tennessee, so every meal is gluten-free; check ingredients for other allergens. See our gluten-free family meals, or order this week's meals.

Sources

Frequently asked questions

What are signs of celiac disease in a child?
MedlinePlus lists nausea and vomiting, belly bloating, constipation, chronic diarrhea with foul-smelling stool, poor weight gain or weight loss, delayed puberty and irritability.
Which children should be tested for celiac disease?
Children with symptoms, and those at higher risk such as having a close family member with celiac disease or type 1 diabetes, even without symptoms.
Should my child stop eating gluten before a celiac test?
No. MedlinePlus says to keep eating gluten for a few weeks before testing, following your provider's instructions; stopping first can cause a falsely normal result.

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